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Our new normal - life on dialysis

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Tuesday, February 11, Scott had his dialysis catheter put in on his upper right chest.  It was a minor surgery, and relatively uneventful.  That catheter is a tube that leads directly to the right atrium of his heart. After the port was put in, he had 2 hours of dialysis in the hospital to make sure there were no surprises.  Now, he's on a Tuesday/Thursday/Saturday 8am schedule at a dialysis center near OSU.  He gathers a pillow, blanket, ear buds, and cell phone charger to keep himself comfortable.  He sits in a recliner for 4 hours while his blood circulates through the large "artificial kidney" machine to remove waste, toxins, & fluid.  (Stock photo to show what a machine looks like.) Scott is definitely feeling better - we've been out to dinner for the first time in months, and his appetite is back.  This is really good news. However, this is not a sustainable lifestyle for our family.  There is no way Scott can go back to the teaching he loves unti

Where are we now? An update...

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The day that we were trying to avoid is upon us.  Scott starts dialysis on Tuesday.  At this point, we ask for prayers (crossed fingers, positive energy, etc.) that it helps him feel better.  Now that he is not teaching, the scheduling frequency doesn't feel so difficult, and his energy level is affecting his lifestyle as much or more than dialysis a few time a week will.  That is IF it improves his energy level.  According to his doctors, it affects everyone differently - he could feel better or worse. We don't know how frequently or how long each dialysis will last, many people go 3 times per week, and can last anywhere from 2 to 6 hours each time.  I will update you as we learn. We don't have a donor at this point.  Two people we know of are in the process of being evaluated, and some have been told either 1) they are not a match, or 2) something in their health history excludes them from being able to donate.  Remember, if you are not a match, you can be added to th

Donors, recipients in 3-way transplant at Ohio State meet for the 1st time

You guys, science is amazing!!!  Last week, a 3 way kidney exchange was made at OSU! Remember, just because you're not a match or type O, doesn't mean you can't help Scott! See the link to the 10TV article below: "Everybody in here, families were affected for the rest of their lives because of a decision that donors made to save lives of 3 individuals, and when I mean save lives, I mean save lives." 3-Way Kidney Exchange at OSU Please consider donating.

Kidney Transplant Infographic

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What do my kidneys really do?

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What do my kidneys really do, anyway? I have never been an expert in biology.  Probably started with the 3rd grade fainting episode during my first dissection experience.  So, when all of this started with Scott's kidneys, I'll admit, I was dumb to the importance that kidneys have to our bodies or even their basic function. The kidneys are bean shaped organs about the size of an adult fist. Most people are born with two kidneys. They are located on each side of the backbone, against the back wall of the abdomen, at about the level of the lowest rib. The kidneys do many things to keep your body healthy and in a state of balance.  The primary function of the kidneys is to regulate the fluid environment in the body.  This is done through the formation of urine.  By making urine, the kidneys are able to: Regulate blood volume by removing excess fluid from the body Regulate blood pressure Filter out waste products of metabolism Maintain the body's chemical balanc

What the heck is CREATININE anyway?

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What the heck is CREATININE anyway? When Scott gets his blood drawn to check the different markers, the one they talk about the most is creatinine.  It is the most commonly used indicator of kidney function. What is it made of? Creatinine is a waste product created when our muscles break down through normal wear & tear.  We all have creatinine.  Healthy kidneys filter it out of the blood, put it into our urine, and it leaves our bodies.  When our kidneys aren’t working well, it builds up in our blood. What is a normal creatinine level? Creatinine levels can vary based on age, race, and gender.  But there is a “normal” range.  In adult men, normal is 0.6 to 1.2 mg/deciliter.  A person with one kidney might have a level around 1.8-1.9.  A level around 5.0 in adults indicates severe kidney impairment. Scott is between 6 and 7. What are the symptoms of a high creatinine level? Every person is different, but Scott is consistent with

Meet a Donor - Story #2: Brian

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Another friend connected me with her cousin, Brian, a great story of a donor's experience... 1.           To whom did you donate and what was your prior relationship?    I donated my kidney to Gary  on 1/12/2017 (can’t believe it’s almost 3 years now).  I did not know Gary previously but I did work with his mom once at a prior employer. 2.         What motivated you to donate?    Gary’s mom (Helen) sent an email to a bunch of colleagues and friends letting them know that she was retiring to move back to Denver, CO to be closer to her son (only child) who had a rare kidney disease and was on dialysis.  My wife happened to be on the email distribution list and she sent it to me as an “fyi” as she thought it was a sad event.  After reading the email I also felt sad for Helen and her family and noticed that Gary was the same age as my middle son (26 at the time).  I simply thought that if it were my son I’d be begging for someone to help so I sent her an email and asked about th